Levi’s Story
Sometimes we hear words being spoken by a doctor and we can’t really wrap our minds around them let alone begin to understand them. They may be very simple words or unpronounceable words but the shock they evoke in us seems to come out of the blue and catch us completely off guard. Perhaps that’s why we find them so incomprehensible – we never expected to hear them. We don’t know what they mean, how they are going to affect our lives, what the future will bring, if we can even deal with whatever it is these words encapsulate. And yet, they roll off the doctor’s tongue with such ease that our minds detect a familiarity on the doctor’s part which makes us believe, in that instant, that we are not alone in this.
PRENATAL AND INFANT
ADVERSE DIAGNOSIS
American Journal of Medical Genetics Report
“Our children are not a diagnosis: The experience of parents who continued their pregnancy after a prenatal diagnosis of Trisomy 13 or 18.”
http://onlinelibrary.wiley.com/enhanced/doi/10.1002/ajmg.a.36298/
Be A Voice
Focus on the Family’s Dignity of Human Life magazine with quotes, Scripture, research, stories, etc about life issues across the spectrum, including special needs.
http://www.focusonthefamily.com/socialissues/promos/advocacy/be-a-voice
Be Not Afraid
An online outreach to parents who have received a poor or difficult prenatal diagnosis. The family stories, articles, and links within this site are presented as a resource for those who may have been asked to choose between terminating a pregnancy or continuing on despite the diagnosis.
Gift of a Lifetime
A resource from Focus on the Family for families facing a life-limiting diagnosis for their unborn baby, that presents the option of perniatal hospice. Also, in Spanish, Un Regalo Inimitable.
http://media.focusonthefamily.com/heartlink/pdf/giftofalifetime.pdf
Sibling Support
“Sib shops” provide support to brothers and sisters of persons who have special health care needs, have developmental disabilities or have a mental health challenge.
http://www.siblingsupport.org/
SOFT
The Support Organization for Trisomy 18, 13 and Related Disorders.
When Love Wins
A booklet from Focus on the Family about continuing a pregnancy after an adverse diagnosis, and it addresses a prenatal diagnosis of special needs.
Throughout https://helprolife.org/ links to other websites are provided solely for the user’s convenience. Geauga County Catholic Pro-Life Coalition (H.E.L.P.) assumes no responsibility for these websites, their content or their sponsoring organizations. The Geauga County Catholic Pro-Life Coalition (H.E.L.P.) and the various churches that make up the coalition do not endorse individual candidates. The sole purpose of the information and articles found on www.helprolife.org is to educate our readers as to the candidates position on the various life issues.
Geauga Co. Catholic Pro-Life Coalition 